Uncle David and the Daffodils (reposted)

Easter always reminds me of daffodils.  Daffodils always remind me of Uncle David. When I was about 4 or 5, Uncle David gave me a beautiful book of poetry (it had daffodils on the front and lots of pictures of beautiful flowers).  I was trying to learn to read at that point, sitting on the couch, when I asked my Mom, “What is d-o-g spelled backwards?”  She told me that was God.  I knew this was significant.

It’s even more significant that Uncle David is thus directly tied in my little kid brain to finding out about God.  Uncle David was not on everyone’s A list.  He was, in the terms of the day, “slow” or “different” (not dumb, just not quite functioning at the mental complexity his particular decade and community preferred.  He had gotten in some pretty awful spots when someone misunderstood his assessment of different situations (think “padded room”).  Uncle David spent a good part of his later life shuttled off to a halfway house on Capital Hill in Seattle.  Some of the relatives breathed a sigh of relief, and except for coming to the island to pick blackberries and thimbleberries and huckleberries once a year so I could make him a pie, we didn’t see much of him for quite a while.

Uncle David died quietly at home.  A funeral was planned for our little community, with some folks figuring immediate family would be the only ones who showed up.  Boy, were we surprised!  From David’s delightfully diverse community, carloads of people came to our small town and filled the funeral home.  After the formal part of the service was over, someone from the back spoke up and said, “We would like to say something…..”  The minister let her come to the microphone.  One by one, a parade of people came forward to speak about how David’s simple ability to love and encourage those around him, to do practical things, to serve, to help in any way he could had blessed their lives over and over again.  We sat their dumbfounded, humbled and incredibly grateful for the profound lesson unfolding in front of us. God, in typical fashion, chose the humble of the world to teach us that his ways aren’t our ways.  That we had missed the point entirely by talking more than we listened.  That there had been much to learn from a humble man with no guile who sought to love his community.  I am grateful each Easter, especially, as I think of the lessons Uncle David gave me on living in the grace of God.

Communion Song

Lord, what does it mean,
In a world so full of fear and greed
With countless folks in need
To serve you?

Instead of seeking so much STUFF
Teach me how much is enough
And how to share the blessings
You’ve bestowed.

Jesus, please forgive me.
Please show me what it means
To walk your way.
I bow down, I lay before you.
I cannot rise again
In my own strength.

Lord, what does it mean
To take the bread and wine
And worship you on Sunday
If the rest of the week is mine?
Lord, my life is in your hands.
Teach me to live as you command,
To be one of your servants in this world.

Jesus, here I am lord.
Offering what I have and what I am.
Let me be poured out for You
As you were poured out for me.
Show me how to be your loving hands.

All of my longings, all my desires
I place on your altar.
Consume them with fire.

Change me; teach me
So the world can see
More of you, Lord, and less of me.

By Teresa Norman 2004

Wolfie (a kindness story)

In a world that’s kind of FULL of all kinds of bad news, I wanted to share a kindness story from two of my favorite ambassadors of goodness…..

Wolfie                                                                                                                             2/26/2020

Today was just another day, (except for the tears and the sadness). It started with no sleep, continued with too much work and ended with missing house keys, puppy vomit in the back of the car, (And an off balance feeling like walking on marbles waiting to fall).

But there was a bright spot – today was the first day of hanging out with my fabulous grandsons after school.

When they got off the bus We were met with enthusiastic slobbery puppy love… Brandy, the St Bernard puppy, and Penny, the gentle loving guardian greeted us with wild enthusiasm, and a distressing cough. Has Penny’s cancer spread?   (Sadness). (My MRI results tomorrow should answer the same question…)

Austin, the wise gentle 10-year-old, explained things to me – “Penny’s cancer might be pushing on her lungs. That’s what the cough is from…. Soon she’ll be up with Tiger (his other guardian puppy that died) and she won’t be in pain anymore.” (Tears)…Grandma lost it.

The sweet wisdom and acceptance, the wise beyond years;  how well mom & dad prepared him. So proud of this guy!

As Austin tried to comfort me, Wyatt, the 7-year-old fire cracker, went and got me four quarters out of his valuable stash to make me feel better.  That didn’t seem to solve it so he brought me one of his loved stuffed animals, Wolfie, to take home for tonight to make me feel better. (If I promised my puppy wouldn’t eat him).

 So lucky to be loved by this tribe.

(Turns out Penny is OK! and so am I)

Fleeing from the Shadows

Little girl, hiding in the shadows
Listening to the terrors of the night
Pillow o’er her head–wishing she was dead
Praying that the darkness doesn’t win….

Half-grown girl, living in the shadows
Trying to be “good” (not knowing how)
Afraid of what it means–the way her life has been
Afraid that she can never be made clean…

Wife and mom, still fleeing from the shadows,
While silently inside she dies each day.
Half alive at best–feeling different from the rest
But not yet understanding what it means….

There is a Light that drives away the darkness
There is a Hope that rises like the dawn!
There is a God who loves you–even though He’s seen it all.
He’s there for you and longs to be your friend….
You can begin again…..to live.

(In honor of Aunt Eleanor, who suffered greatly and is now at peace)

When the Dr. is Being Too Nice…

Yesterday was the one week follow-up after surgery.  There was good news and bad news.  First the good news….I got one of my surgical drains removed.  Yay!  That is exciting because that one hurt every time you moved a hose.  The other good news was that the surgical margins (edges around the pieces of me they amputated) were clean – no cancer all the way out to the edge.  This means no more surgery.

But that wasn’t all….out of the 18 lymph nodes they took out, 10 of them still had cancer that had not responded to treatment.  That means my response to the trio of chemo drugs they had used was only partial.  The oncologist will make the final decisions on what happens next, but it looks likely that radiation will be postponed in favor of more chemo with different drugs.  Since radiation just attempts to kill whatever cancer cells are left in the area where surgery was (local treatment) , that becomes a second priority to killing whatever ones may have wandered through the lymph system and set up shop in distant locations and may be preparing to become a metastatic nightmare (systemic treatment).  This may also involve another PET scan or CT scan to see if there are areas of problems in other organs that weren’t big enough to show up when they did the original scan in March but are now.  We have an appointment with the oncologist next week.

Have I mentioned how grateful I was to be done with chemo?  That no matter how anxious I was about the disruption, logistics and potential exhaustion of radiation 5 days a week for six weeks while trying to work full time, I could always comfort myself with “at least you’re done with chemo.”

We were looking at Facebook last night as a way to distract ourselves from the news of the day that we didn’t want to marinate in, and a post from a dear friend who lost his wife to cancer a few months ago was there saying how much he missed her and how relationships are really all that matters in life.  Tears.  Fears.  Hard to keep  emotional distance from that at the moment.

Glad I’m walking through this with an amazing family and some very supportive friends.  But wish we were all walking somewhere else instead of down this road.

 

The Biggest Relief

I don’t know if I can even start to describe how big of a relief it was to wake up last Tuesday afternoon in my hospital room, looking at my loving husband, one of my fabulous sister-in-laws, and one of my daughters grinning at me, with no tube in my throat, able to talk and smile.  My previous surgeries had been disasters, and this one went phenomenally well.  The palpable sense of relief kept me smiling and empowered and energized for the next three days.

When your airway is a mess, it gets complicated.  But Dr. Daniel Liu, anesthesiologist, did a fabulous job giving me the right drugs so I wouldn’t remember the camera he put down my throat the show him how to put the other tube down without making a mess.  I was awake, but sedated, so I could follow directions and so my airway muscle tone wouldn’t collapse like it does when you’re out.  There are now directions in my chart for how to intubate me safely, in case I ever need surgery again.

The Cumulative Effect

Chemo is “interesting.”  The fact they can put medicine (poison) in you in the right amounts and combinations to kill mostly the cells that need to die, is pretty amazing.  Some of the side effects, though, not so much.  And then, the dr said recently, there is a “cumulative effect.”  (This is what explains why it is getting harder and harder to show up for work every day). Things get harder as this stuff builds up in your system.

My particular drug combo is Taxotere, Herceptin and Perjeta.  Every week is different.  The treatments are every three weeks (one more to go! – then just Herceptin until March). Treatment was on Wednesday, and Thursday I managed to work two hours before I had to go home and collapse.  I slept 16 hours that day.  Friday I worked.  Saturday, we had kids and grandkids over for father’s day, and I made it until 3 o’clock before my battery was completely unplugged.  I spent the next 16 hours asleep, then slept all day Sunday.  My hands, once again, are showing the burns and blisters from the chemo, and my fingernails appear to confirm I am going to lose about 6 of them before this is all over.  But today, it appears I can function (as far as the new, temporary version of normal goes).

Last treatment, it was necessary to take anti-nausea drugs twice a day for the first week.  This time, only once so far.  This morning I am waiting for it to be 8:30 so I can go get a nice bag of IV fluids added before work.  Countdown to surgery = 43 days.

 

Night Songs

There have been so many times, for me, it seems God can’t get my attention during the day, so He’ll wake me up at night.  I know to some people that sounds strange, but I’m still a simple country girl and that kind of thing just seems normal.  Last night was one of those times where my busy little brain had been running in circles and I woke up to a song in my head I hadn’t thought of for many many years.

I Need to Be Still, by BJ Thomas, was a song a friend taught me years ago.  Part of the words are “When there’s trouble all around and my soul cries out for rest, when it feels like I’m failing even though I’ve done my best, when decisions get so heavy, there are answers that I need – you know it’s time to just be still and let God love me…..”  (click the link).  This was the gift last night.  A reminder that God knows where to find me, and that sometimes I just need to be still and not try to figure things out….easy to say, hard to do.

 

Sometimes it’s just time for a meltdown

I try to be pragmatic, practical, reasonable and emotionally stable.  But once in a while, that just doesn’t work.  Last week we went for the pre-surgery appointment to make sure we could schedule surgery for August.  Everything looked good.  I was thrilled to finally have this “end” of this stage in site and on the calendar, but that night I lost it.

A whole new range of undefined challenges come with having surgery scheduled.  Radiation will follow surgery – how will I react to 5 days a week for 6 week while working full time?  How tired do you get?  What if the hoped for “100% pathological response” to chemo (the one that means you are a lower risk for re-occurrence), doesn’t happen?  What if the MRI shows that not much really changed after the 6 treatments with Taxotere, Herceptin and Perjeta that I am in the process of enduring?  I want some good news here!

While I try maintaining an attitude of gratitude (I have a truly amazing husband who loves me (the kindest person I’ve ever met), fabulous friends, neighbors who are kind, coworkers who are supportive, three children who are fiercely loyal and loving, and four little grandbabies who know who to drive depression and anxiety far away.  I know God is in control of my outcomes.  But some days, fear creeps in.  Words like aggressive and invasive are scary words.

Thursday was my day for a meltdown.  A good cry (if there is such a thing), a warm blanket, a hug, and some sleep, and Friday I was ready to drag myself through another fun day.

No lump-still cancer

Somewhere, a long time ago (a lump decades ago), I remember hearing that a breast cancer lump doesn’t hurt.  So when something was hurting, I wasn’t that concerned.  I had regular mammograms, it  hurt=it couldn’t be cancer.  I had a mammogram scheduled in a few weeks.  I feel pretty fortunate, that unlike some of the women in the video below, my doctors recognized right away what it was.  Since a lot of people have never heard of inflammatory breast cancer, I’ve included the link to the video below.  Good information.  Hope you and those you love never need it.

 

Afterflash (a poem)

No longer helpless, unloved or alone—
A woman with choices.
Redeemed to the bone.
I’ve come through the fire-
Felt the heat of the flame.
But I am God’s daughter,
Called by His holy name.

Empowered by His Spirit
By grace I can stand,
My face towards the future
Fulfilling His plan.
A channel of mercy,
A bearer of light
Redeemed by His goodness-
I will not fear the night.

The God of creation
Walks each day by my side.
I will trust in His mercy-
There is nothing to hide.
Though chaos surround me
And angry winds roar
I am safe, I am strengthened
For He is my Lord.

The Lamb is a Lion,
The servant, a King.
He is my shelter.
Of His grace I will sing.
He will lead me and guide me-
I have nothing to fear.
Jesus is victor.
He loves me…He’s here!

5/21/93

The View from the Front

This article yesterday in the Seattle times tells about the struggle refugees are having making ends meet in the recession economy and how the budget cuts are impacting them here in Washington State.  I took some time to read the comments that followed the article, and was made aware of how great some of the hostility is that people hold towards not just illegal immigrants, but also towards those our government has invited to be here.  While I understand their financial frustration, and fear that their piece of an ever-shrinking pie will somehow disappear, I am also aware that my friends who are refugees have faced things beyond my comprehension.  The link here is to an article from the Bangkok Post, written by a friend of a friend, highlighting the situation these folks needed a refuge from.

The Fear of the “Other”

Thosepeople are different than us….”, my usually reasonable co-worker said this morning.  She was trying to explain to me why immigration and immigrants and all those “other” people make her mad coming into “our” country.  (Not sure which country her ancestors immigrated from-mine were German, Norwegian and Swedish).  It was hard not to get mad.  But we were at work, so there wasn’t enough time for a full-blown rebuttal of “why so many of my friends and the people I respect are refugees or immigrants” and why I believe our country is enriched by what they bring or that those of us who are not Native American need to walk a bit softly and with humility on this one.  She knows how much we love our “adopted” Burmese granddaughters so, she just wanted to tell me that the Somali refugees next to her house were blocking the driveway with their car and she thought they should be deported. Oh, and, that we let too many of those “other” people into this country!

I’m sorry her neighbors had bad manners, or maybe didn’t have her understanding of property rights.  But stereotyping everyone from every region (except of course, white North Americans who forgot that they too immigrated) is a really bad idea!

Refugees go through a stringent screening process to get here.  Article 1 of the Geneva Convention as amended by the 1967 Protocol provides the definition of a refugee:

“A person who owing to a well-founded fear of being persecuted for reasons of race, religion, nationality, membership of a particular social group or political opinion, is outside the country of his nationality and is unable or, owing to such fear, is unwilling to avail himself of the protection of that country; or who, not having a nationality and being outside the country of his former habitual residence as a result of such events, is unable or, owing to such fear, is unwilling to return to it..”[3]

Taking a deep breath, saying a pray for those, like my friend, who do not understand the value of diversity, the necessity of compassion, or the richness and beauty to be gained by learning from what each person created in the image of God has to offer.

Standing by your bed (poem)

Standing by your bed
Watching you breathe
Holding your hand
Preparing to grieve
As slowly your life
Is slipping away
It may be soon
Or some other day
The gift of your life
Brought me my greatest joy-
(I’m the lucky girl
That married one of your boys)
Now as you embark
On this journey unknown
That probably soon
Will carry you home
Please know you are loved
Know how much we care
Know the God who made you
Will greet you there

Wandering between worlds….(poem)

(working in a job that helps connect people with semi-affordable dental care…..)

Each day is a study in contrasts….
The poor coming seeking treatment,
The rich come seeking a deal.
Under the different designer labels
(Or lack thereof)
The human thing still goes on….
Each person in need of love,
Of being seen and listened to.
Each person wanting to not be turned away.
A study in contrasts-
Money not making you a better person-
Just giving you better choices.
Those who offensively demand their own way
Thrown in with those who just hope someone will make a way….
Each of them, in Mother Teresa’s word “Jesus in disguise”
Can I see Him in them? Can they see Him in me?
God, give me your eyes, and your kindness
To meet the day, and be a bearer of light….